I was on the phone yesterday with some nurses, techs and coordinators trying to get everything squared away for our trip tomorrow for Sarah’s MRI. She’s having it done at Huntsman’s Hospital because that’s the one that had the 1.5 tesla machine which she needs because of the metal coils and clamps in her chest. Anyway, I called Emily, one of our two nurses at Primary Children’s that works with the heart transplant team there (the really helpful ones) to ask about how to go about getting operative reports about placement of her shunts, coils and clamps. She told me she’d just take care of it, but that’s not what this post is about….
When I told her about the MRI, she told me their scheduler would be calling me soon to schedule the heart catheterization. Then as we were talking, I mentioned that the University liver doctors said she probably wasn’t sick enough for the liver transplant. She was surprised (they haven’t received reports yet), and said, “Oh, that’s good. Maybe she will do better with just the heart then.” …HUH??? I told her I was under the impression that if we didn’t do the liver, we wouldn’t do the heart yet, either. She said, “Well, this will certainly be interesting”. …Yep…. To say the least…. Not sure what to think now….
When I told Sarah, she said, “HUH?” I told her, “Yeah, I’m really confused now.” And she said, “I think I’ll stop trying to figure it out. We’ll just do what they tell us.”
Hope she does, and wish I could….