Sarah texted us at 8:30 this morning to let us know that the doctors were talking about her. She texted back about a half hour later and told us that she had good news and to get here quick. We weren’t quite as quick as she wanted us to be. We were still having our weekly cuddle and briefing before we switched places again. We also stopped at the store for some snacks and drinks for our kid that likes to eat again. (Hooray!) When we finally got here, she held out for a bit and finally when we begged her to tell us, she shared her good news. They cancelled her echo today, and postponed it for next week, believing there wasn’t a need today. Her albumen level seems to be holding pretty steady, with her last (smaller) dose of albumen being yesterday afternoon, she was at 3.8 today. So far her belly doesn’t seem to be swelling or draining too much, either. Crossing our fingers that the higher albumen levels are allowing the excess fluid to be absorbed back in and flushed out with her diuretics. Daddy had to go back home for a few days. After what they’ve been through this week, watching the daily miracles and progress following such a hard weekend, I could see that their bond has intensified. It’s so sweet how much they adore each other and how strong they are together. It made me feel a little inadequate to replace him as the caregiver, but she’s doing so much better, I’m not really worried anymore. (We’ve has so many “better” and “good” days in a row now, I was kind of waiting for our “step back” again. Maybe we’re at a point that she’ll just keep stepping forward to discharge. Wouldn’t that be wonderful? With Heavenly Father in charge of this, anything is possible.) She told me she’s glad I’m back again because she missed me. That was all I needed to hear. So grateful that I get to be her with her, too.
She had an awesome physical therapy session today, doing much more than she was asked. They worked on muscle strength and balance, and she even stood on each food for 10 seconds. I hugged her and told her I was so proud of her for pushing herself and she said simply, “wanna get outta here.” Motivation plus. She is getting much stronger and her hands are also a lot less shaky than they have been. She has started texting, spending time on her computer, and coloring again. We pulled the Crikut out again today and made some letters and a puppy for Zack’s door. As we were cutting and sticking paper together she said, “Guess what? I’m back!” She was working on crafts and actually enjoying herself, a lot.
The highlight of our day was a picnic with Julie and Zack. It was funny how long it took us to all “get it together” to get out of the unit. As soon as one one of the honored patients were ready, we realized a drug was due, or we had to call and reschedule PT, or water needed a refill, or a PICC line had to be flushed, or we had to grab the bubbles… it was quite the project, but so worth the effort. There’s tons of construction going on in the front of the hospital, so we had to go out the south entrance. Across the driveway, there’s a grassy area by the University Hospital where we found some shade and parked the bike and the wheelchair. Three of us ate lunch, Julie blew bubbles, I took pictures and we all smiled and laughed with the simple joy of being outside. There is something so good for the soul in a little “vitamin D therapy”. The weather was perfect, and while the sunshine warmed my face, all the smiles on Sarah, Julie and Zack’s faces warmed my heart.